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Latest News

Are some livers better than others

PSC research is a top priority in the UK liver community

March 11, 2019

Your survey responses have been acted upon and heard.

Medicinal cannabis for pain

Using cannabis to control pain in PSC

March 5, 2019

The facts about medicinal cannabis and where to find more information.

Medicine supply

Your Medicines Supply After the EU Exit

March 5, 2019

What to expect in the event of a no-deal EU Exit and and what to do now.

Rare Disease Day

Rare Disease Day 2019

February 28, 2019

Raising awareness online and on radio.